Patient involvement and support

The National Respiratory Audit Programme (NRAP) aims to improve the quality of care for respiratory patients. NRAP actively engages with patients across our programme to ensure our outputs are aligned with the needs and priorities of people with lived experience and their caregivers.

New patient resource: guide for young people with asthma starting university

Going to university is an exciting step. It brings new opportunities, new experiences and greater independence. It can also come with challenges, particularly if you are managing a long-term condition such as asthma.

This resource has been developed by the National Respiratory Audit Programme (NRAP), with input from young people with lived experience of asthma, to help you prepare for the move to university. It brings together practical information, advice and top tips to support you in managing your asthma confidently while studying, living away from home and settling into a new environment.

Download the resource here.

Our work with patients

NRAP has established a lived experience adult patient panel. This group share their own experiences of health and care with the aim of helping NRAP to focus on improving the things that matter most to people living with respiratory conditions and their carers.

NRAP has also collaborated with the Royal College of Paediatrics and Child Health RCPCH to establish a panel which represents children and young people with lived experience of asthma, as well as parents and carers. The Asthma &Me Ambassadors are aged 14–24 and have joined together from across the country with a shared mission to improve asthma care and services for children and young people.

These patient groups meet regularly online to share their priorities for respiratory care and discuss how NRAP can empower both people with respiratory conditions and those responsible for the care they receive.

If you live with a respiratory condition, or care for someone who does, join us to help improve respiratory healthcare. You can contact the team at nrapinbox@rcp.ac.uk. We would love to hear from you!

Support and resources for patients

NRAP work with our patient groups to co-produce resources to help people living with respiratory conditions understand their healthcare. 

You can refer to this jargon buster to help support your understanding of medical and audit terms used across our webpages, reports, and programme outputs. 

Adult asthma

Audit information for patients

Children and young people asthma

Audit information for patients  

COPD

Audit information for patients 

Pulmonary rehabilitation

Audit information for patients  

Patients assessed for PR up to 31 March 2024

All PR services that are part of the NHS and care for people with respiratory conditions in England and Wales collect personal (confidential) information, and information about the care you receive. They will only collect this information if you agree that it can be included in the audit - this is called giving consent.

Patients assessed for PR from 1 April 2024

The audit has gained special legal permission to collect confidential information without patient consent, unless a patient has set a national data opt-out preference:

Useful links

Our patient groups have shared some useful links that may be beneficial for those with respiratory conditions: